Western Australia’s Incapacity Providers launches on-line care useful resource for folks with Down syndrome

Western Australia’s Incapacity Providers has gone stay with a brand new web site that provides details about the well being issues of individuals with Down syndrome.

The My Voice My Well being web site was designed by Down Syndrome Western Australia by way of the funding supplied by the state’s Division of Communities.

The web useful resource hub has info on well being matters related to folks with DS; lists of public well being suppliers, peak our bodies and non-profit organisations throughout WA that gives assist for well being circumstances affecting individuals with DS; and assets for well being professionals, together with checklists and communication suggestions for working with folks with DS and different developmental disabilities.

WHY IT MATTERS

It’s estimated that about one in each 1,100 infants born in Australia will develop Down syndrome, which is likely one of the commonest chromosome problems on the planet. 

In a media launch, Incapacity Providers Minister Don Punch stated the My Voice My Well being web site will empower households, carers and folks residing with DS with necessary info and be a “great tool when visiting well being professionals”.

“Individuals with Down syndrome reside lengthy and fulfilling lives, with loads of alternatives to make their very own selections and stay independently. My Voice My Well being is a superb instance of how we will use info know-how to allow folks with incapacity to stay their finest life,” he stated.

MARKET SNAPSHOT

Different international locations have additionally launched related digital assets to assist the well-being of individuals with DS. In the UK, the Down’s Syndrome Affiliation has developed the Well being Swap app to empower folks with DS to make constructive way of life selections whereas enhancing their digital expertise. 

In the US, a platform referred to as Down Syndrome Clinic to You gives up-to-date, personalised well being and wellness info to individuals with DS. It additionally assists caregivers and first care suppliers in giving evidence-based care within the absence of a specialist. It was developed by analysis and scientific groups from the Down Syndrome Program and Lab of Pc Science at Massachusetts Basic Hospital, a Harvard Medical College-affiliated educational hospital.

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